10 Years Coming….

It’s been months (and months and months) since I’ve updated my blog! The last time was just after being fat-shamed by a so-called specialist last year that my doctor finally sent me to. At that point I was pretty much done with doctors, especially the one I had been seeing since 2005. I had tried numerous times to find a new doctor….one was just as bad or worse than the one I was seeing so I just gave up. Tired of being knocked down time and time again.

Instead I focused on losing weight. I had tried for years to lose weight, never getting any help from my doctor, naturally. I tried every diet in existence, so it seemed….except for the diets you have to pay for. I couldn’t afford to to do that. I still can’t but I had to do something. I was at the heaviest I had ever been and it wasn’t getting any better. With doctors saying things like, “eat less calories,” and “you’re not getting enough exercise,” and “eat smaller portions,” and not even asking any questions about my diet or exercise, it became blatantly clear that I was not going to get anywhere with them! So, I signed up with Nutrisystem.

I started Nutrisystem on April 24, 2016. I lost 8 lbs. the first month. I am currently teetering between a 50 – 60 lb loss. I’m quite proud of myself! Nutrisystem does work but you have to stick to it. I followed the plan exactly as they instructed and by Thanksgiving I felt that I could relax a little. After the holidays I got back to it and I will continue to stay on it until I am at a weight that I’m happy with. I digress here, this post is not about my weight loss….but it WAS the start of a new, more confident me.

After the holidays were over, I realized that as much as I despise doctors, I still need one. I realized that it must be a new doctor because my current doctor was not acceptable. Tired of her constantly sweeping my concerns under the rug and giving me stupid answers. For 6 years I heard, “You’re too young for knee replacement surgery.” She never once sent me to a specialist to make that assessment. Last March, when she finally did send me to a specialist, the specialist said, “You’re not too young for knee replacement surgery. You’re just too fat.” So, if my doctor would have sent me to him 6 years and 60 lbs ago, then maybe I would have had some kind of treatment or the surgery and regained my life by now! Thanks a lot, Doc.

So, in Jan. 2017. I started researching doctors in neighboring counties/towns. Of course, I had done this before a few times and ended up not making any progress towards finding a new doctor. This time was different. It had to be different! I made an appointment with a local doctor. I was prepared to get knocked down yet again, because that’s what always happens. This time was different. This new doctor spent an entire hour with me! She sent me for xrays and she lined up an appointment with a specialist in March. She told me that she didn’t think my current weight would be an issue with knee replacement surgery. I was so relieved to have found this woman! She was kind and sympathetic, informative and thorough. This was the first time in 10 years I had felt hopeful. 10 freakin’ years I had been trying to get help. In the very beginning it wasn’t even pain, but I knew something was wrong. Year after year, no special blood tests, no imaging, no help, no information. Now I finally had some hope!

When I saw the specialist, she was also very nice, sympathetic, informative and thorough. Instead of telling me I was too young for knee replacement surgery, she explained to me WHY age was a factor. Instead of telling me I was too fat, she explained to me WHY weight/BMI is an important factor. She even offered a referral to a weight loss specialist. Instead of telling me to do squats to strengthen my leg muscles, she sent her in-office Physical Therapist in to talk to me and he gave me specific exercises to do at home. (My insurance won’t pay for pre-surgery PT.)

This doctor, asked me many questions about what I have tried and offered injections (other than the normal cortisone shots that didn’t help me at all) and told me it was entirely my decision as to which injections I wanted to try and she gave me informational pamphlets to help me decide. In April, I went back to her with a decision. I decided on Synvisc-One injections. This injection was suppose to create cushion in my knees where I was bone on bone. I was very nervous. I’m already in tremendous pain so I was apprehensive about the pain of a needle being jabbed into my knees! It really turned out to be ok. It wasn’t that bad. Afterward, I was walking with little pain and faster than I had in years! Of course, it didn’t last long. A few short hours later it was right back to the way it was before. My knees are just too far gone.

In an effort to help with pain management, my primary doctor prescribed a medication that helps nerve pain and nerve pain caused from inflammation. It can cause depression so I have to be careful. It has helped with some of the odd pains I was having…..and therefore helping me sleep at night. Not perfect sleep, but better sleep. I’ll take it.

So, it’s June now and I am still working on my weight and building the muscles in my legs to support my knees. I can’t get the injections again for 6 months, but they won’t help anyway. I just have to keep trying different things to manage my pain.

Slowly but surely, I am moving forward. I had been stuck for 10 years trying to get help with no success. I was sinking deeper and deeper into depression and hopelessness. I am finally getting help and guidance, information and treatment!

Some Will Never Understand….

Something has been on my mind lately. (Well, something is always on my mind! I can’t help that.) I’ve been mulling this certain thing around in my head for nearly a week now. I have to write about it to get it out of my brain!!

A friend of mine, read something I had posted on Facebook about chronic pain issues. She messaged me about it. She said she had read several things I had posted about chronic pain and chronic illnesses, and even some personal things about my own situation. She said she couldn’t help but notice how focused I was on my pain. Immediately, I felt defensive.

HER: Why are you always focused on your pain?

ME: Because my pain is a huge part of my life. Everything I do or don’t do is based on my pain level.

HER: If you just forget about it you’d be happier.

ME: How do you know I’m not happy?

HER: Because you always seem to complaining about your pain.

ME: You ain’t even heard complaining yet!! I save that for my therapist.

HER: You see a therapist and you still focus on your pain?

ME: Yes, I see a therapist. She has been very helpful in teaching me how to deal with my pain and other issues.

HER: What other issues?

ME: That’s none of your business.

HER: Ok. I still think if you’d just stop focusing on your pain, you could live a better life.

ME: You have no idea, and you never will until you are faced with a chronic illness, how hard it is to even get out of bed on some days. You will never understand that just taking a shower sometimes takes all the energy you have for that day. You don’t realize how much time it takes to do any given task because of your pain. You have no clue how depressing it is to not be able to just go and do the things you have always enjoyed, such as hiking, site-seeing, playing at the park or going to the zoo with the kids/grand kids, making bath products, fishing, shopping for hours on end at the Mall, planting a garden every Spring, rearranging the furniture, volunteering, washing the car, holiday celebrations, birthdays, cooking, going to the movies…. You don’t have a clue! When you have a chronic illness, your entire life changes! Everything is different. You approach things differently. You do everything differently. I hope to God, you never have to know what it’s like to have chronic pain!

HER: Isn’t it just arthritis?

ME: (Seriously wanting to punch her in the face!) It’s not JUST arthritis! It’s arthritis in my entire lower body, from my hips all the way down to the joints in my toes. It’s a degenerative disk in my spine and arthritis working it’s way up. It’s arthritis in my fingers, that gets bad when it’s extremely cold and even worse if I don’t crochet every day. It’s arthritis, that has resulted in knee bone damage with severe pain! I walk with a cane because sometimes I am very unsteady on my feet. I can’t sit, stand, or walk for more than 20-30 minutes at a time. I am in pain 24/7. I get NO relief! I don’t even sleep well due to the pain!!

I hit send on the messenger….but I wasn’t done. I had to stop this conversation.

ME: Don’t say anything. You are seriously coming close to ending this friendship. I’m done with this conversation.

That was the end of it…. I haven’t heard squat from her since. That’s ok because I don’t need the drama. I have enough to deal with. 

Honestly, if you don’t have a chronic illness, then you will never understand completely. You can try. You can also try to be more understanding of those who DO have a chronic illness. They really could use your support.

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