Tag Archives: misery

Misery

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7

I’ve been thinking a lot lately about my current situation. There’s one word to accurately describe how I feel. Miserable.

I have never been so miserable in all of my life. I’ve been through some rough times: emotionally, mentally, and physically rough. From childhood to adulthood, and beyond, I have had some serious situations arise. I have dealt with some traumatic issues and come through them all. I suppose I’ll come through this, too. But when? I don’t see much improvement until the new house is finished.

The issues at the moment are dealing with an elderly father 24/7 and my own pain and mobility issues. Dad is 86 years old and sometimes reminds me of a toddler. One day he likes something and the next day, he doesn’t. Or the other way around. He has to have his chocolate drink at lunchtime and if I give him prune juice instead (because he’s bitching about being constipated) he gets his briefs in a knot. He sometimes wants something and when I order it, he loses it or never uses it because he doesn’t remember why he would want that. He watches the news all day long so I sit in the kitchen at my laptop. I can’t stand to hear the news all damn day! When he lets me find something else to watch, he bitches and moans at my choice, and rolls his eyes repeatedly. His usual bedtime is 10pm. However, recently he has been staying up until sometimes midnight! That’s about the time I start getting ready for bed so I have no time to destress, unwind and watch tv without hearing him bitch the entire time. I need that time, even though it’s just 2 hours, to clear my head and not be completely focused on what he’s doing and where he’s at (because he tends to fall). At least when he goes to bed, I know where he is and that he’s not going to fall down! So, when he stays up late, I’m agitated. I go to bed agitated and wake up agitated. I sleep in my power chair in the living room (if I can sleep at all) because I can’t sleep in my bed. I am trying to save money to get an adjustable bed so that I can at least be in my room and semi-comfortable.

On top of all of the agitation of dealing with an aging father, and pain and mobility issues that make everything difficult for me to do, the house is literally falling apart. A couple of weeks ago, the ceiling in the bathroom fell in. It just got so wet from all the leaks in there that it couldn’t take the weight.  It was just yesterday that my son was able to come over and cover the roof and hopefully, it will be ok until he can do more work. The house is crumbling. It’s very stressful and need I say uncomfortable?

It’s very easy to slip into depression and never come out of it. I am miserably uncomfortable. I’ve always been a pretty positive person. I used humor to get through the rough shit in my life but it’s hard to find humor in the situation at hand. I get tired of people telling me to be more positive as if that’s going to improve the situation. Sorry, but even if I were the most positive person in the world, it wouldn’t change anything. I am as positive as anyone would be in this situation! In fact, I think I’m more positive than someone else would be if they had to deal with the same issues, so forgive me if I sound like a bitch when I snap…and I will snap sooner or later.

Signing off for now before I have an aneurysm…

aunt-debbie

Chronic Pain and Depression

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14

I’ve been depressed lately. I’ve only spoken to 2 other people about the issues bringing me down and I won’t discuss the details here but there are a few things I do want to say.

No one really understands what a person with chronic pain is going through. They will never understand until they’re the ones suffering from it. It’s debilitating. It’s exhausting. It’s sad, and it’s lonely.

I can’t just make plans to go do something because I don’t know what my pain level is going to be from one day to the next, or even from one hour to the next! When it rains or when the barometric pressure rises, I am in more pain than usual.

I don’t want to be sitting at home. I’d like to be working. I’d like to be doing the things I used to do. I’d like to be able to pursue the hobbies and activities I thought I would be pursuing at this time in my life. I’d love to be able to go visit my grandkids, near and far. I’d love to go to the movies, hit the Mall, or go to a Flea Market. I’d love to go to museums, haunted houses, and concerts. Hell, I’d love to just do the simple things we all take for granted when we’re healthy, but these days everything is a painful chore.

I have good days and I have bad days, but let me be clear: Having a good day does not mean I’m pain-free. It just means my pain level is at a more tolerable level. Just because I smile or crack a joke doesn’t mean I’m not in pain. It just means I’m trying to be as close to “normal” as I can be, for appearances. I don’t like people feeling sorry for me and I sure as hell don’t like being the center of attention. So, I try to be “normal” like you.

I’m not lazy. Chronic pain is not an excuse to get out of doing things. I don’t have the energy to go to events like birthday parties, weddings or luncheons. When I do attend a function of any kind, I have to leave early. I just can’t handle hour upon hour of socializing and appearing to be happy. Another consideration is accessibility. Will I be near a restroom or will I have to walk a long distance to get there? Will there be stairs or an upward/downward slant? Will I be able to sit down? Is there a place where I can rest? Will I have to stand in line? There are so many things I have to consider before doing anything.

When you suffer from chronic pain, you also suffer a loss of identity. The things that made you who you are, are gone. I used to be a cross-country backpacker. It was something I hoped I could back into when my kids were grown and out on their own. I can no longer look forward to that. I used to be a great cook. I used to be a small business owner. There are so many things that made me who I am but now I’m having to find a new me. It’s hard to reinvent yourself when you can’t actually do anything anymore.

I hate when people say things like, “I hope you feel better soon,” or “Have you tried x, y, or z?” Seriously? Yes, I’ve tried everything under the sun. Nothing helps. Someone once said to me, “It’s just arthritis.” If this were just arthritis then I could be more active and exercise some of the pain away. If it were just arthritis I could find a simple remedy that would ease my discomfort. But it’s not just arthritis. I have joint damage in my knees. My legs are bowing outward at the knees. This is what makes walking and moving about so difficult, so painful. Then there are the people who, good intentions or not, are very condescending. Calling me “hon” or ‘sweety” when I’m having a bad day is a sure-fire way to get ghosted!

Chronic pain never goes away. Chronic pain causes depression, anxiety, changes in mood, appetite and sleep patterns. It causes loneliness, grief, isolation, and fear. Yes, FEAR. Every day, I have to think about every movement I make, every step I take, for fear of falling or doing too much and making my pain level go up even higher. I fear that I will injure myself and lose the little mobility I have left. Have you ever thought about being stuck in a nursing home? I have.

I’m so sick and tired of being expected to do things. I only go out when I have to go out. I go out for groceries once a week, go to doctor’s appointments, pick up meds, etc. Yes, I go out to lunch once a week, but that trip serves a dual purpose. I normally have other errands that need to be done. People don’t realize that in between those days is rest and recovery.

On top of the daily struggle, the holidays are approaching. The most depressing time of the year for me. I won’t have family and grandkids around. I won’t be able to cook all the delicious yummies I used to make for my family. I can’t wrap gifts easily, so gift bags it is! I can’t decorate or put up my big tree. I won’t be looking forward to any of what the holidays bring.

I’m not writing this for sympathy or attention. I want people to understand what chronic pain is and what it does to a person’s life. It’s crippling. It’s not my cup of tea and I’m pretty sure it’s not yours either.