I’m Still Here….

I had worried about having gallbladder surgery for the past month. I worried that something would go wrong. This inspired me to clean out closets, drawers, cabinets etc. I threw away a lot of crap that I had accumulated over the years. Such clutter. I didn’t want to leave such a mess for my family to have to deal with if something went wrong during surgery. I had voiced my concerns with close friends and family. They all told me “Don’t worry,” “Everything’s going to be ok,” “You’re going to get through this,” “Nothing’s going to happen to you,” etc. Deep down I knew they were right but you just never know when something might go wrong. I wanted to have things in order just in case.

I wrote letters to my children, my Dad, my sisters and a few close friends. Letters to be opened only in case of my death or in the event that I couldn’t speak for myself. These letters were hard for me to write but I did it. I wanted them to know how important they are to me. I couldn’t assume they knew. Sometimes we get so busy with life, we tend to not say things we should and sometimes we say things we shouldn’t. I wanted the last words from me to them to be what was in the letters.

I also made lists of things like internet accounts, bank accounts, etc., so that my family would know what needed to be done and how. I made a list of certain belongings that I wanted my family members to have. I made a list of special requests if I end up in a nursing home. Yes. I did that.

I know, it sounds ridiculous now but I really was worried about leaving my family behind.

My Dad and my son accompanied me to the hospital and I kept it together quite well. I didn’t want them to see how scared I was. They were with me up until I was moved into surgical waiting.

 

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Image Copyright Being Aunt Debbie

 

The surgeon was about an hour behind. This led to even more stress and I could hardly wait for them to give me that sedative they had promised! When they did, I felt some relief, but it wasn’t as great as they said it would be. I was rather disappointed! When Paula, the surgical nurse came to see me, I had to go to the bathroom so she helped me wrap a blanket around me because my giant butt was peering out the back of that very fashionable hospital gown. Then she walked me to the bathroom with my IV bag in one hand and the other across the small of my back. She was very nice, as were all the other nurses, but she was my favorite of them all.

 

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Image Copyright Being Aunt Debbie

 

After I finished my business in the bathroom, Paula walked me back to my bed and then rolled me out of surgical waiting, through a set of closed doors and down a long corridor. I thought of the song Hotel California by the Eagles. Maybe I would never leave this place.

The operating room was freezing and everything was huge and sparkling clean. Paula helped me onto the thin, metal operating table. She put warm blankets over me. I farted. I thought to myself, “Oh my God, the surgeon is going to be so distracted by my bodily functions he’s not going to do it right!” Paula got my blood pressure cuff settled on one arm and a finger probe on the opposite hand. The anesthesiologist, Dr. Flock, came in and put probes on my chest. His name struck me as funny and I tried not to laugh but all I could think of was my Dad being silly. I know Dad would have jokingly said, “Get the flock out of here.” Paula strapped my arms down and also placed a strap across my upper legs. I was really scared at this point. Dr. Flock said he was giving me something in my IV bag (I don’t remember if he told me what it was) and that I would feel warm and sleepy soon. He put a mask over my face and told me to breathe deeply. I started to cry. Paula comforted me and I said something that I can’t remember now. My voice was very low and slow…

As my lights went out, Paula wiped a tear from my cheek and said, “It’s going to be ok.” THAT was the last thing I remember and all I can say is that Paula is a very, very special person.

Sick & Sorry

Lacking just the right words for a title for this entry. The closest I can come to it is Sick & Sorry. I’ve been sick for 4 days now. Running a low grade fever off and on, coughing, sneezing, slight headache. I’m constantly on the go. I’m always expected to be someone’s caregiver in some way or another. I try to do what I can to help my family and extended family. I try to be there for the people I care about, friends included. BUT it’s time for me to slow down and take some time to take care of me. Along with the severe arthritis pain in my lower extremities and spine, I have a head cold that doesn’t seem to be getting better. I’m trying to rest, drink lots of fluids and take care of me for a change. This just doesn’t seem to sit well with some people though. For some reason they feel they have been let down; disappointed in some way. Is it too much to ask for a few days to get well? I’m sorry I’m human. I get sick; not often but it does happen. After many harsh words being said, I’m left feeling like the bad guy, like I’m the one at fault…and for what? For not being able to do what someone else wants me to do. For being sick and trying to take it easy. Forgive me for being human. I’ll try not to let it happen again.

The Joy of a Little Walk

I’m feeling better than I have in months! My doc gave me a new anti-inflammatory, plus a rescue drug for those days when I have severe pain, and just after one dose of the anti-inflammatory I could feel the difference! I am on Day 4 now and I am thrilled to have some mobility back. (Refer to The Enemy I Must Face for the story of my condition.)

I took a walk last night. It wasn’t a long one, but it was a start. It was smooth walking for the most part and I enjoyed the mild heat and the green all around me. (We have trails on our property so I don’t have to actually go anywhere.) I looked up and watched the birds as they flew over and smacked at a few little flying pests flitting about my face. Even that annoyance didn’t bother me because I was enjoying being able to walk with very little pain! With any luck, this new medication will continue to “do it’s thing” so that I can walk most evenings.

I continue to do my water exercises, which feel wonderful! I am “riding my bicycle” (stationary peddler) every day and I found a DVD of Yoga for Arthritis. I’m not sure I can do many of the poses, but I will do a few now and again, in hopes that I will regain strength after some time and be able to add more. My dietary changes, well….I keep goofing up, however doc said I had lost 20 lbs. so I must’ve done something right!

One day and one walk at a time…..I shall persevere.

WARNING: Some Doctors Are Hazardous To Your Health

I went to a doctor a couple weeks ago and really got nowhere in terms of pain relief. I left wondering “What the heck was I thinking going to this guy?” But how would I have known he was a jerk, since I had never met him before? Now I know.

My records actually made it from the orthopedic doc’s office to “jerk” doc’s office. I didn’t have too long of a wait before being called back or before the doc actually came in. I was surprised about that! The nurse took down all my vital information before telling me the doc looked like Santa Claus and that he was easy to talk to. Then she left the room.

Now, don’t get me wrong – I didn’t DISagree with everything this doc told me. I just don’t like his bedside manner and his knowledge, or lack of knowledge would be more accurate. He first told me I needed to lose weight. I know this. I’ve been struggling with my weight since my first child was born and wasn’t diagnosed with hypothyroidism until my youngest child was 3. I’ve been on meds for all this time and granted sometimes I don’t eat right, but even when I have consciously made an effort to lose weight, nothing happens. I had lost some weight recently though and I am still working on it. Doc proceeded to tell me I need more exercise. REALLY? And how does he think I’m going to do that when I am in extreme pain 24/7? He told me I need to eat a low fat diet. He asked me what do I eat for breakfast? I told him I normally don’t have breakfast. He snipped at me, “You really should eat breakfast; even if it’s just a piece of sausage or bacon!” WAIT. WHAT? Didn’t he just tell me to eat a low fat diet?

Because of my response to the exercise suggestion, he next asked me what I was taking for pain. I told him I had tried all the OTC pain relievers and the only one that helped a little was Aleve (Naproxen Sodium). I told him I didn’t like taking it all the time. He asked me why and I told him I didn’t like the Increased Risk of Heart Attack and Stroke that accompanies this drug. I could hear in his voice how shocked he was at my statement. He said to me in a tone that I didn’t like, “Where the heck did you hear that?” I told him since I had found out I had arthritis I’ve been doing research and all my sources said the same thing. He said he had never heard that. He said that Naproxen Sodium was the drug of choice for arthritis pain. He looked me straight in the eye and told me I was WRONG. Then he told me that I must have it confused with Avandia, which is a medication for diabetes type 2. He said that Avandia may be pulled from the market for the same thing. I knew it wasn’t Avandia because I wasn’t researching diabetes medications. I was researching arthritis and arthritis pain relievers. I told him that ALL of the NSAIDS have the same warning. He sat there and flat out told me I was wrong, again, and that I must have Avandia and Aleve confused, after all they start with the same letter. Give me a break! Ok, I’m not the most intelligent person in the world but I am not stupid and I was very resentful of his tone as well as his assumption that I must be stupid. Now, I don’t mind a few side effects. I know I may not have all the side effects, heck, I may not have any of them. However, I DO mind life threatening warnings.

Now, even though I was uncomfortable taking this medication, he prescribed it anyway! At this point I was just fed up and wanted out of there. But before I left I decided to test him. In my research I had learned that the only way to rule out rheumatoid arthritis is to run a specific test. I asked him, “What kind of arthritis do I have?” He proceeded to tell me the difference between rheumatoid arthritis and osteoarthritis. I was fuming. I already know the difference because I researched it. I told him very sternly, “You didn’t answer my question. What kind of arthritis do I have?” Then he told me it was osteoarthritis. I asked, “How can you tell that just by looking at me and my records?” He told me it was because I don’t have the typical curling deformity of the fingers that accompany rheumatoid arthritis. Can’t people have RA without having it advanced to that degree? I’m disgusted at this point and I really want to kick him in the balls. He didn’t run any tests, nor did the orthopedic doctor. He could be absolutely right in saying that I have osteoarthritis but his bedside manner leaves a lot to be desired. IMHO, he is making an assumption without doing tests. Experience? Perhaps. Laziness? Perhaps. Arrogance? Perhaps. Probably all three.

Here’s the icing on the cake: I was desperate for pain relief so I got the prescription filled. Along with the medication comes a few pages worth of drug information; side effects, how to take the medication, what to report to doctor, etc., etc. But the very first line of one page reads WARNING: MAY INCREASE RISK OF HEART ATTACK & STROKE.

So Doc, I was wrong huh? Maybe you’d better do some research of your own. I am sending a copy of this drug information page to him in hopes that he will do just that.

Update – The Fight Continues

In a previous post I made a list of 4 things that I am going to work on in order to become healthier. I list those things again, below, but this time with the actions I have taken thus far.

#1. More Exercise – My Dad bought me stationary peddle exerciser. I am using it twice per day for at least 10 minutes at a time. I will increase the amount of time as I become accustomed to it. The first day I used it, I went 10 minutes and I hurt all night long. My enemy (arthritis) was not happy with me. Too bad.

#2. Change My Diet – I have begun eating healthier foods. I am trying to be aware of what I’m eating at meal time. I’m drinking more fruit juices, water & milk. I am eating more fresh fruits and veggies, nuts & whole grain products and cheese. I will not lose my chocolate so I am eating dark chocolate, but not every day!

#3. Use Essential Oils & Herbs – I made myself some Arnica Massage Oil, which I use each night to help ease the pain and relax my muscles. I use epsom salts and a dab of peppermint essential oil in my bath water; but so far I take more showers than baths. I dab a little lavender essential oil on my wrists when I begin to get depressed or anxious. It’s very calming. It’s really too hot & humid right now to enjoy a cup of Chamomile Tea before bed, but when it cools down I’m on it! Then maybe I will sleep better.

#4. Reduce My Weight – This is the one that will be the hardest of all to accomplish! BUT using the list above, my weight should slowly be reduced. I don’t have a scale so that’s on my list of things to do.

I am still drinking an 8 oz. bottle of Elations each day, taking MSM, Vit. D & Calcium supplements, drinking 6 oz. of black cherry juice each day. As much as I don’t like to do it without a Doctor’s guidance, I’m taking 1 Aleve every 12 hours. It’s the only thing that will help even a little bit. I am feeling a bit better. The pain is still there, I’m still a bit depressed but it’s hard to distinguish between depression from the pain and depression from personal family matters. BUT I’m going to do whatever I can and fight this enemy of mine! Of course, I’ve yet to finish jumping through all the hoops necessary for Medical but I’m not done fighting yet!