If you’ve been following my blog for much time, you’ll know that I suffer from chronic pain and mobility issues. I’m in pain 24/7 and if it wasn’t for my pain meds I’d be climbing the walls for certain. Without pain medication to “take the edge off” I wouldn’t be able to function at all. I’m thankful that I can still do a little, even though it’s not a lot.
I was thinking last night about all of the things I used to do and how much I miss doing them. It’s terribly depressing. I can’t believe I’m in this predicament at only 56 years old. I am thankful for what I have and what I can still do, but I do miss all the fun things I used to do just 15 short years ago.
Most people take things for granted, as I did. I never thought I’d be in this shape. I never had to think about what I couldn’t do because I could do anything I wanted to do, if I chose to do so.
These are some of the things I miss the most:
- Walking & Hiking – I used to be a cross-country backpacker and had put that on the back burner while I raised my children. I still took walks and when we moved here to SW Missouri, we established some trails and I started walking them every day. Now, I’m lucky to walk to the bathroom. I have to think about every step and every movement because if I step wrong I could fall. If I fall, I could suffer an injury that would reduce my mobility even more.
- Cooking – I used to love cooking. I was damn good at it, too. I have many cookbooks and I always enjoyed trying new recipes and switching them up a bit to accommodate my family. I’m barely able to throw a frozen dinner in the microwave these days. I know that’s a simple task, but there’s still the movement around the kitchen collecting silverware, napkins, plates, etc., and pulling the fixings out of the refrigerator for salad or some other side dish.
- Cleaning & Organizing – Yes, I said cleaning. You don’t know how much you miss such a mundane chore until you can’t do it anymore. My house was never immaculate. I had kids and pets. Shit gets dirty. I didn’t stress over it but I cleaned the house once a week. My house used to be organized. Everything had its place. I even packed away the kids’ summer clothes in the winter and winter clothes in the summer. These days, I can’t clean weekly. What most people do each week is what I do once a month. I do a little each day. That’s all I can do. My house is horribly unorganized these days. I have boxes shoved in closets and I don’t even know what’s in them! I’ve started going through things but that’s going to take me the rest of the year to get done! If I’m lucky!
- Going to the Movies – Oh, how I love seeing a movie on the big screen! I used to take the kids to the movies a couple times a month. I’d grab my “movie” purse, which is huge, and I’d smuggle in candy so all we had to pay for was popcorn and drinks. Those were the good ol’ days! Now, going to the movies is painful and awkward. I walk very slow and I feel like I’m going to get trampled. I only have one hand available because I have a cane in my right hand. Someone always has to carry my drink or popcorn. I try to grab seats where other people aren’t going to walk over me to get to other seats. The last time I went to see a movie, people were walking over me and kicking my feet in the process, which causes excruciating pain up and down my legs. I was in tears. We were in the very back row of the theater, too!
- Shopping – Yes, even grocery shopping! It’s exhausting, even in a scooter, trying to maneuver around idiots who have to have a stinkin’ family reunion in the middle of the aisle. It’s hard to reach things, even things that aren’t really that high. It’s hard to reach down and get something that might be back a little too far on the bottom shelf. Last Fall, I had the bright idea of going to the Mall and I thought I was going to die. I had my rollator with me so I could walk a little and then sit and rest a little. It was still too much. Any shopping is something I have to work up the courage to do. You just don’t understand unless you’ve experienced chronic pain.
- My Home Business – I made my own bath & body products; soaps, bath salts, lotions, body sprays, etc. I loved it! I started with tried and true recipes and then through research and trial and error, came up with my own recipes. I had managed to create a base of repeat customers and was hopeful about the future of my business. I had to close in 2010 because like cooking, it’s a lot of movement in the kitchen that I just can’t do anymore.
- Restorative Sleep – I used to sleep good and hard every single night. These days, I’m lucky to get 5 hours of sleep. Not restorative, restful sleep either. It takes me a long time to fall asleep because I can’t find a position that’s comfortable. Between the pain and not being able to relax, it takes me sometimes 2 hours to fall asleep. Then, I’ll sleep for 45 minutes to an hour or so and wake up again. I do this all night long.
- Exercise – I always hated exercise when I was younger, aside from walking. Now I wish I could do any exercise without excruciating pain! I bought a recumbent bike a few years ago thinking I might be able to do it but that was a big fat NOPE. I have a glider that I do on occasion and the only reason I can do it at all is that you don’t have to bend your knees to do it! It’s still painful and I push through, but sure wish I could do it more and without pain.
- Playing on the Floor with The Littles – The fun of having grandkids is being able to play with them. I used to get down on the floor and play Legos with my son. My daughter and I used to sit on the floor and do puzzles on the coffee table. Nowadays, if I get down on the floor it’s because I’ve fallen and I won’t be able to get up.
- Taking The Littles to the Park or Zoo – The last time I went to the zoo was when I was in charge of my grand daughter’s preschooling. Boy, we had a grand time! She learned a lot that day about animals and their habitats. My legs had just started bothering me so I had a little trouble but not like today. If I tried today, I would have to have a scooter or be pushed in a wheelchair.
- Hanging Photos – I used to switch up photos of my kids, nieces, and nephews all the time. I just don’t have it in me anymore to hang new ones, and now I have grandkids and tons more photos!!
- Gardening and Yard Work – Our yard used to be the nicest one for miles. Total strangers would stop to tell us how nice our yard looked! I loved working in the yard and in the garden. I even helped Dad with the mowing. It was peaceful on that riding mower. Therapeutic in a way. I can’t mow these days because the vibration reverberates through my body and THAT is painful as hell. We always had a nice garden with all kinds of vegetables, from Anaheim Peppers to Zucchini. I had tulips, irises, roses, and lilacs in flower beds around the house. Now, I can’t do the work. I miss the veggies and I miss the flowers. My lilac bush is still alive and the irises are growing wild…but so are the weeds. I hate it.
There are so many things I miss from my “old life” but I try to be thankful for what I can do now. It’s hard to stay focused on the good when there’s so much negativity all the time. It does cause some depression but, like I said, I am thankful for the things I can still do.
Oh my dear friend, I so wish I could just take all the pain in your body and toss it away. I never realized that your mobility was so limited 🥺. I know this might sound, well like someone trying to get you to smoke the “good stuff” but my dads RA doctor said smoking pot would not only ease his pain but help him sleep as well. I thought that’s all good and stuff but pot isn’t legal in Texas, but it is in New Mexico so we could just go across state lines to get him some. But my dads a fuddy-duddy and won’t even try 🤨.
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I have tried that and it does help me sleep better but I’m out. Lol. Thanks for your sweet words, my friend. ❤
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Hi Deb,
I don’t want to sound like a complete tree-hugging hippie, but since I am a Master Mindfulness Practitioner I can’t pass by your post.
Have you tried meditation for pain management? As with everything, it takes consistency and practice, but it’s based around a couple of techniques: a body scan, which encourages you to also notice what *doesn’t* hurt and how great other parts of you are, but also ‘noting’ – where you teach your brain to ‘just notice’ the pain but not spiral off into a ‘climbing the walls’ scenario.
Happy to send you some links but if you search “body scan meditation” you should have some success. Best wishes, I hope you find some relief besides pills 🙂
Samantha
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I have tried everything under the sun and the only thing that even comes close to taking the edge off the pain, is pain medication. Thanks for reading.
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Keep up your positive attitude Debbie even when it’s hard but remember we are entitled to down days just don’t let them spoil life fir you💗💗💗
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Thanks dear friend! I really do try but like you said, I have to give myself down time. ❤
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😘
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my wild weeds irk me too
all the best
🙆💕🌈
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